Community members organize barbecue fundraiser to help the family of boy in need of liver transplant
KNOW & GO:
What: Ethan Roth Fundrasier
When: 2 to 6 p.m. Oct. 1
Where: The Roth Estate; 12282 N. Bloomfield Road, Nevada City, Ca, 95959
Costs: $20 for adults; $10 for children aged 6 to 16; free for all children under 5
How: register by visiting The Ethan Roth Fundraiser Facebook page or by calling 530-263-7274 or 415-497-4614 to reserve the tickets.
Community members of western Nevada County are rallying to support the family of a 13-year-old boy born with cystic fibrosis, a chronic genetic disease that could lead to infections and extensive damage to the lungs, pancreas and other organs.
“It’s just every time he gets hospitalized, we have to go to San Francisco, and every single time it uses funds,” said Cynthia Prout, Ethan Roth’s mom.
The Ethan Roth Fundraiser will take place in the form of a barbecue and silent auction at the Roth Estate at 12282 N. Bloomfield Road in Nevada City from 2 to 6 p.m. Saturday.
Ticket sales for the fundraiser end 6 p.m. Tuesday. Tickets cost $20 for adults, and $10 for guests between the age of 6 and 16. The event is free for all children 5 and under. Interested donors can register by visiting the “Ethan Roth Fundraiser” Facebook page, or by calling 530-263-7274 or 415-497-4614 to reserve the tickets.
Tickets are also available for purchase at Prospector’s Nursery in Nevada City, What’s Up Coffee in Grass Valley and the KNCO Radio Station, Prout said.
After Ethan’s condition took a turn for the worse three years ago, his doctors recommended that he undergo a liver and pancreas transplant. He has been put on a waiting list for that procedure.
Ethan is being closely monitored by two teams of doctors at UC Davis and UCSF medical centers. Since Ethan’s doctors are very far away, Prout said she often finds herself traveling between Nevada County and the two hospitals, which results in high transportation expenses.
“His liver has been bad for the past three years, but in the past, I would say probably nine months, we spent about $15,000 with hospital stays, with hotel, with food, with gas, with time off work, the commute… I can’t even begin to tell you how much it costs,” Prout told The Union Friday, as she and Ethan headed to Davis for an evaluation.
Due to his condition, Ethan had been diagnosed with methicillin-resistant staphylococcus aureus (MRSA), a bacteria that is resistant to many antibiotics. As a result, he is unable to stay in available free housing options.
Prout said it’s unknown how long Ethan has to wait before he gets the transplant.
“He is not that high (on the waiting list) right now. It takes time to move him up, and he is not a complete failure. So I don’t know how long it’s going to be before his transplant. It could be any time; it could be a month from now. I don’t know,” Prout said.
The fundraiser on Saturday promises to be a fun night for adults and kids alike. The Bleeping Bleeps, a rock band from Grass Valley, will perform during the event.
In addition, entertainment options such as volleyball, a trampoline, swings and a horseshoe pit will be available to children.
Attendees are advised to bring a potluck side dish, chairs or a blanket. Hot dogs, hamburgers, water and soda will be provided.
The owner of the Roth Estate is not related to her family, Prout said. The property belongs to a family who loaned her the venue for the event.
Members of the community who want to give Ethan’s family a financial leg up can visit: https://www.gofundme.com/jsq58adu?ssid=749725063&pos=1. People interested in getting a tax deduction can make a donation through Penn Valley’s Word-A-Live Church, where an account has been set up for Ethan. For those interested in buying Ethan Roth shirts and hoodies, contact firstname.lastname@example.org or email@example.com to place an order by Oct.15. Shirts cost $20 and the hoodies are $35 each.
To contact Staff Writer Teresa Yinmeng Liu, please email firstname.lastname@example.org, or call 530-477-4236.
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